The Experiences of Individuals in Newfoundland and Labrador (NL) Living with Hearing Loss: The Development of a Proposal
Hearing loss is one of the most prevalent chronic conditions facing Canadians and the people of Newfoundland. The goal of this project was to engage the research team at Memorial with the hearing loss community in order to gain an understanding of their everyday health challenges. The Canadian Hard of Hearing Loss Association-NL (CHHA-NL) was the community partner. Four community based events were held across the province between January and March 2017 at St. John’s (2), Labrador (1), and Grand Falls Windsor (1). 43 members of the hearing loss community participated in the events. Based on the findings a larger research grant was written and submitted for funding to the NL SUPPORT Patient Orientated Research competition (2017). Accessibility to health care resources was identified as the priority research area for this population. CHHA-NL and members of the community worked with the research team in developing the NL SUPPORT grant including a participant recruitment strategy, an interview guide, selecting the population of focus, and creating a patient advisory council to oversee subsequent research related to hearing loss. This activity fostered collaborations between the research team, community members, and CHHA-NL. As a result, a research project that is realistic, doable, and reflective of the “voices” of individuals living with hearing loss in the province has come to attrition.